I Could Rip a Tissue (Except I Can’t)

A 1980s Crackerjack reference for you there. I’ll explain.

Back when I reappeared after my hospital visit last year, I mentioned that I’d thought of a song which I’d planned to post on my return, but had decided not to.

This one:

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Young Knives – Human Again

Truth be told, the reason I refrained from posting it back then is because Human Again is not how I felt. For whilst my skin condition has pretty much completely cleared up – almost miraculously in the areas which had been affected for over ten years – and whilst I seem to have survived the life-threatening pulmonary embolism (the blood clot on my left lung), issues remain.

Regular readers may recall me mentioning that after my GP had referred me to see a dermatologist, but before I actually got to see one, I developed pain and discomfort in both hands, both arms, and both legs.

Although I’m no spring chicken, I figured it was a bit of a coincidence that this had started after the psoriasis flare-up, and so had done a bit of online research. Sure enough, there’s such a thing as psoriatic arthiritis, the symptoms of which all seem to tick the boxes of those I’d suddenly started experiencing:

Pain and loss of grip in my hands? Check.

Pain and loss of strength in my arms? Check.

Pain in my legs whenever I go to stand, walk up or down stairs, or just walk a bit too far? Check.

All having come on during an episode of psoriasis? Check Check Check.

The symptoms haven’t really got any better or worse since I came out of hospital: I can’t open jars, bottles or packaging without using my teeth; I can’t raise my left arm above shoulder level and I have to use my right arm to force it up when needed. I get pain and stiffness in my hands if I sit and use a keyboard for very long (which explains why I’m on a reduced-hours phased return to work at the moment, and why my posts here haven’t been particularly frequent recently).

So what’s going on with this being treated? Well, not much.

Whenever I’ve been back to the hospital for outpatient appointments, with different consultants from different departments who oversaw my care when I was in hosptal, there seems to be a reluctance for anyone to address the issue.

For example, back in November I attended the Haemophilia Centre, where I was seen by a haemotologist (surprisingly enough). I asked them if they considered the arthritic issues I was experiencing to be a circulation problem, and if so what they proposed doing about it. The response I got was firstly that they knew nothing about it as there was no mention of these issues in my discharge papers. I politely presented them with a copy of the discharge report in question which, whilst not mentioning it in either the Principal Diagnosis or the Additional Diagnoses and Complications sections, did state that I had presented with the symptoms on the day when I was called back, and admitted, to hospital. The consultant advised me it was not a haemotology issue, so I needed to take it up with the other consultants.

Which I did, the next time I saw my dermatologist. At first it seemed promising, as they mentioned referring me to a rheumatologist, which I was of course agreeable to. But then the course changed, and they sent me for more blood tests and, as it goes, another three biopsies.

When I saw (a different dermatologist) last week, I asked whether or not a decision had been made: did they agree it’s psoriatic arthiritis and if so, what happens next, or if not, will they now refer me to a rheumatologist? I was told that they thought the flare-up in my psoriasis was caused by a different underlying condition, but declined to expand on what that might be, instead telling me that the consultants from the other departments would be speaking to be shortly.

Look, I get that a consultant from one field is not going to want to provide advice or comment on a condition which is not their specialised subject, but this is getting rather frustrating now.

So today, I’m off to visit the Haemophilia Centre again. Hopefully I’ll get some answers and hopefully a referral, but I think it’s more likely that I’ll have to wait another week until I visit the General Medicine team.

Sorry, there’s no attempt to inject any humour into my situation this time. Normal service will be resumed shortly, I hope.

In the meantime, this is as close as I can muster:

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The Stranglers – (Get A) Grip (On Yourself)

More soon.

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Late Night Stargazing

Apologies for the radio-silence for the past however long it’s been (and thank you to those who got in touch to check I hadn’t actually died this time); fret not, I’m well.

Truth be told, after finding a bit of a flourish writing about my recent hospital exploits, I’ve run into the usual brick wall that is trying to think of things to write about in January.

Call it the New Years Blues if you like. Or Seasonally Affected Blogging.

Or let’s call it what it really is: I couldn’t be arsed, and couldn’t think of anything interesting to impart which might lift the winter fug.

Also: I started back to work this work, the first time I’ve ventured to the office in almost three months. But more of this later.

In the meantime, a late night tune which popped up on my iPod on the way back home from work the other day (or maybe it was on the way in…already the working life is a real blur…I dunno…does it matter…?), the title of which (the first bit, not the bit in brackets) seemed appropriate for to end my New Year lull:

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Scott Walker – The Old Man’s Back Again (Dedicated to the Neo-Stalinist Regime)

A couple of 2019 admin points for you:

  1. I’ve gone back to using Box.com to share the mp3s I post here, as I know some of you (predominantly Google Chrome users, I think) were unable to access the links when I was using PixelDrain (as I have for the past year or so). If anyone remains unable to play/download stuff I post, please let me know via the Comments or at the email address you’ll find somewhere on this page, and I’ll see what I can do);
  2. As with a recent post, in the unlikely event that there’s a tune you want to hear that I’ve previously posted but the link is dead, leave me a Comment on the page in question and I’ll do my darndest to reupload as soon as I can;
  3. I’ve been writing this blog for over five years now – yet it seems this is this the first time I’ve ever posted any Scott Walker. How the heck did that happen…??

More soon.

** UPDATE – I’ve received notice that there’s an issue with accessing the tune via Box.com, so here’s an additional link for it via PixelDrain:

Scott Walker – The Old Man’s Back Again (Dedicated to the Neo-Stalinist Regime)

Sorry ’bout that and all that.

 

 

 

 

When The Clock Strikes

In all honesty, I’d intended to post something else by now, but my efforts have been somewhat hampered by me apparently losing the cable which connects my external hard drive (where 99.9% of my music is stored) to my laptop.

Correction: not apparently, actually.

So until the new one I have ordered has arrived (at which point, I will doubtless locate the missing one) I’ll just have to make do and track down the song(s) I wish to post.

Starting with tonight’s choices.

(I mention all of this purely so that you realise the lengths I’ve gone to so that I might post something tonight. I truly suffer for my art.)

Several years ago, when Hel and I shared a flat, we threw a New Year’s Eve party. I’ve written about this before, here, should you care to revisit it. For hopefully obvious reasons, I’ve not refreshed the mp3 links. (By the way, if ever you want me to do so, just leave a comment on the relevant page and I’ll sort it as soon as I am able to.)

Our living room had been transformed, with netting Christmas lights on every wall, flashing away to such an extent that one party pooper, at around 21:00, asked if I could stop them flashing as he was getting a headache. Oh yes, my friends know how to party alright.

All of the sofas had been pushed back to create a dancefloor, and I’d installed a glitter ball underneath the main light in the room. It didn’t revolve, but it did catch the light from the Christmas lights and reflect them back out. It looked pretty good, I thought.

Against the back wall was my vinyl and CD collection, and in the middle of them I’d bought and placed a (very cheap) set of CD decks, with a rudimentary cross-fader, which I’d rigged up to play through my fairly decent speakers. The idea was that I’d DJ most of the night, but anyone else could have a go if they liked, and they could see what music was available to them before they did so.

Other than sorting out a few “must play” tunes, I don’t usually sort out what I’m going to play in advance, preferring to play it by ear: see what goes down well, then try and find something similar to keep the mood going. But being New Year’s Eve, I had planned what I was going to play at midnight: I’d decided we needed something which included a clock striking, which I would time to happen at midnight.

I had landed on these, the first as the last record before midnight….:

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Daft Punk – One More Time

…which I’d then let run on for a few seconds to the next track on the album:

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Daft Punk – Aerodynamic

…which I’d cut off after the chimes and, after a moment or two of silence to allow those who wanted to cheer and/or snog their other halves, go into this:

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Stardust – Music Sounds Better With You (Radio Edit)

Pretty good, right?

But then, early doors, one of my mates approached me and told me he’d sussed out what I’d be playing at midnight. He was wrong, of course, but when he told me what he thought I’d play, I had to agree that his idea bested mine.

This:

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Orbital – Chime

As it happened, I played none of them, for at midnight I was far too busy being offended by a (friend of a friend) guest who told me that:

a) all of the music I owned was shit, then

b) that I was really old (which wasn’t inaccurate, strictly speaking, but it’s not something one should ever tell the host), and who then

c) proceeded to hide my Beastie Boys anthology CD to prevent me from playing anything from it.

For the record, I would have played Sabotage at some point,but since I’ve posted that at least twice before, here’s the back-up plan tune:

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Beastie Boys – Sure Shot

More soon.

Oh, and Happy New Year to you all.

R.I.P Rick

As well as marking Kirsty MacColl’s death earlier in the month, there’s one other person who I always mark the passing of, with the same song every year.

By which I mean: you know what’s coming, don’t bother reading on if this offends.

2016 was a year when we lost oh so many of our popular culture heroes: David Bowie, Prince, Victroia Wood.

But I’d be lying if I didn’t say that the one I was most upset about was my childhood idol, Rick Parfitt.

So, with absolutely no apologies at all, here’s Quo’s one and only Christmas song:

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Status Quo – It’s Christmas Time

That’s probably me over and out until the New Year, so let me take this opportunity to wish everyone who stumbles onto my pages a very Merry Christmas.

Oh, and more soon, obviously.

A Surprise Discharge

There’s not much more to tell you about my time in hospital, or rather there’s very little left that I can wring a bit of humour and/or a tune or two out of. So I’m going to rattle through the rest of the incidents of note and wrap things up.

Firstly, there’s something I omitted to tell you; in between the nurse’s call to my folks and them walking in on me mid-grease, there is some news as to what exactly I’m still doing there.

The nursing staff remain concerned about my vomiting episode. It is thought that I may have a tear ‘somewhere’ which has led to any liquid I’ve consumed to fall into places not intended to store liquid (you’ll let me know if I get too technical, won’t you?). I am to remain on a water only diet for the time being.

Added to that, and more definitively, on a couple of occasions, it has been observed that I get short of breath rather easily. Test results are now back in and I am told I have a pulmonary embolism, which is a blood-clot on my (left) lung to you and me. As a result, I am placed on a oxygen mask, which makes talking to my parents when they visit rather difficult.

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Radiohead – My Iron Lung

For the record, I am not placed on an iron lung, but this post needs breaking up a little bit and I can’t think of any other songs which are even vaguely appropriate.

Although, maybe this:

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The Sweet – Love is Like Oxygen

or perhaps..

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JJ72 – Oxygen

In other news, in a conversation with one of the consultants, I am told that my “sepsis is now under control”. This is a condition which has never been mentioned before and doesn’t crop up again; I assume at the time it is to do with the alarm over my blood tests which first led me to hospital, but it is also omitted from my discharge report.

However, a little research tells me that sepsis is not necessarily, as I thought, a blood problem, it’s a serious complication of an infection, which, if untreated, can lead to multiple organ failure and death. Not so funny anymore, right?

Symptoms of sepsis include:

  • a high temperture
  • chills and shivering
  • fast heartbeat
  • fast breathing

…all of which I have presented with or complained about at some point during my admission and stay in hospital.

Although it’s not specifically mentioned in my discharge papers, it seems pretty clear to me that the alarm the hospital showed when they got my blood tests back just before I was admitted was because I probably had sepsis due to the pulmonary embolism.

(After I’m discharged, I go to stay with my parents for a week or so, to convalesce. During that time, various family members visit me, including an aunt who for many years was a nurse, and whose opinion is often unwanted, but on this occasion is gratefully received. She reads my discharge papers, and mentions that it was a pumonary embolism that killed my grandmother. Later, she sends me a message where she mentions me having had a “near-death experience.” I show it to my mother, and flippantly comment that she’s exaggerating things a tad. “No,” says my mother, “I don’t think you realise how serious things were.” Having done the research, I get it now.)

No clever song for this bit, so you can let it sink in just as I did.

Oh ok, maybe one:

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The Housemartins – Think For A Minute

For the rest of the week,  friends visit: Hel, Kay and Ian on Monday; Richie on Tuesday, Jo on Wednesday. It’s absolutely love to see them, to know friends are true friends concerned for my well-being (that’s not to sound like I’m dissing those who didn’t visit; I got texts from everyone who knew I was in hospital asking how I’m doing and wishing me well). I am snowed under with fruit, magazines, books and an ipod charger.

This last thing is essential as by Monday evening I’ve decided that the in-house entertainment leaves a lot to be desired. There is a television in my room, attached to one of those moveable crane-arms. But here’s the thing: you can only watch the terrestial channels (which is fair enough, I suppose a Sky subscription is a little too much to ask of a cash-strapped NHS), and you can only watch those between 7am and midday.

My morning routine now includes catching the end of the BBC’s Breakfast show (I’m ill, but not so ill that I’d choose to watch Piers Morgan on ITV), followed by a progam about celebrities tracing family members who fought in the First World War, followed by Homes Under The Hammer (seriously: what is former Manchester United striker Dion Dublin doing on that show?), followed by the first fifteen minutes of some sort of ‘criminals caught on CCTV’ show, hosted by short-arse slaphead do-gooder Dom Littlewood, and then the screen is filled with a message asking me to purchase credits if I wish to keep watching.

I pay my TV licence, and I pay my National Insurance contributions, so I feel a little put out by this demand. I decide I’m not sufficiently obsessed with Bargain Hunt or Flog It! to pay for (what I consider to be) a third time for the privilege of watching them. Thankfully, the radio is free, but none of the digital channels are provided as options. No 6Music then. I end up listening to Radio 2 from mid-day onwards, to idiots calling in to Jeremy Vine, and then Steve Wright, who I find hasn’t changed since the last time I listened to his show, around thirty years ago on the bus home from sixth form (this is not a recommendation).

Alarmingly, repeated exposure means I find myself quite liking the new Michael Buble single. Ipod it is then.

Over the course of the week, I have some physiotherapy, designed to help me walk better again. This is more because I have been laid up and have not actually used my legs for days, rather than addressing the pain, loss of strength and grip in both my hands. But still, on the second session, I progress from standing and walking from my bed to the door, to completing a circuit of the hosiptal floor.

Rem Murmur demos

R.E.M. – We Walk

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Helen Shapiro – Walkin’ Back to Happiness

On the Wednesday morning, I go to have a scan on my left arm, to see whether or not I have a blood clot there too. As I am wheeled out of my room, my physiotherapist happens to stroll by. He tells me that he probably won’t come to see me again today (as we had arranged) but he would definitely be back before I am discharged. He gives me the impression this is not going to be soon, that there’s no real rush, and that I’ll be here until the weekend at least.

Back in my room, I’m visited by a consultant who rather sheepishly tells me that they may have lost the results of the biopsies they did the week before. I think she is expecting me to kick off, but it’s not in my nature.

“Ah well, these things happen,” I say. “So you’ll need to do them again, I suppose?”

She looks at me, somewhat surprised.

“If we can’t find them, yes. We have got somebody going through all of the results trying to find them, though. I must say,” she adds,”you’re taking this very well.”

“Well, what’s the point in getting angry about it?” I reason. “It’s not going to make the results magic themselves back into existence. It’s an admin error, as far as I’m concerned, and I’m always blaming admin for things going missing at work, so I can’t really complain when I’m on the receiving end, can I?”

But the following day, before I can have any more physiotherapy, or find out whether my biopsy results have been located, I am told I am to be discharged. Given everything that has been said or alluded to previously, this comes as a bit of a surprise. But several hours later, after a lot of paperwork is completed (the discharge report lists not just the pulmonary embolism and the vomiting event, but also tells me I had pneumonia. As far as I can recall, this is the first time this has been mentioned during my stay) and I have been given a load of medication and creams and strict instructions about how to use at least one of them, I am waiting outside for a taxi.

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Simon & Garfunkel – Homeward Bound

And that’s it.

But.

I can’t leave it hanging there, so let’s rewind a few days.

It’s just after my first session that my physiotherapist suggests the catheter should be removed so that I can build my strength up by actually having to get out of bed to go to the toilet. The day before, I had summoned the nurse and advised her that having not had a bowel movement of the solid variety for several days, the urge was now not quite overhwelming or urgent, but certainly imminent. She provides me with a bedpan, offers to help me position myself upon it (“No thanks!”) and then leaves me to my own devices.

I climb on board.

Have you ever tried to use a bed-pan? It’s really difficult. For although you know that everything is in place to catch whatever emerges, your mind remains resolute.

“You learned a long time ago”, it says, “that having a shit in your bed really isn’t the done thing.” I’m not Spud from Trainspotting, for God’s sake. I have control.

And so my body resists, and I have to ease myself back off the bed-pan and admit defeat, mission unaccomplished, .

The next day the catheter is removed. Just so you know, it hurt more coming out that it did going in. Ouchies.

And the combination of these two events (the failure to crap, and the begrudging knowledge that I now have to get up to pee) leaves me with a song in my head, the title of which explains my thought process now I have to actually get up to perfom my daily ablutions in a normal way:

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Slim Whitman – I’ll Never Pass This Way Again

More soon.

Remembering Kirsty

The 18th day of December, and the 18th anniversary of the day we were robbed of one of Britain’s greatest musical talents.

I mark her passing every year, and never do I struggle to choose a song to play in her honour.

This year: the lead single from her brilliant Kite album, a single I bought on 12″ on the day of it’s release simply because I knew that it was Kirsty and therefore it was bound to brilliant. Almost twenty years later, my opinion hasn’t changed.

She never let me down – and the lyrics (sadly) are just as prescient and relevant today as they were back in 1989  when she dropped this absolute pearler:

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Kirsty MacColl – Free World

More soon.